...A drug that only works the first few hundred times" -Taylor Swift Toxic positivity – what an interesting term. Wait, hold up…...

Today is Rare Disease Awareness Day. I hope you have learned a bit more about the rare disease of Epidermolysis Bullosa and how it...

Other random tidbits and facts about Epidermolysis Bullosa (EB) So far I’ve tried to share some of the major characteristics and...

It takes a village. I’m sure you’ve all heard the African proverb that it takes a village to raise a child. I couldn’t agree more. What I...

Over the meadow and through the woods, from blisters to wounds we go. If you’ve been following along on our journey this week regarding...

Fingernails and toenails goodbye? OH MY! Baby hands and baby feet ....they are the cutest little things, aren’t they? The sheer miniature...

Blisters. If we break down the meaning of the 2 words Epidermolysis Bullosa we get epidermis (which is the outermost layer of the skin)...

We are a week out from Rare Disease Day 2021. To continue our efforts to spread advocacy and awareness I’m going to make a post each day...

Have you ever been triggered by something so strongly that it stops you in your tracks and makes it seem as if the world stops, even just...

I bet many people who are parents can attest to the excitement and happiness they experience as they start to prepare their child’s...

As promised, I’m going to give you a glimpse into our life, raising awareness for our son Graham’s diagnosis of Epidermolysis Bullosa...