Hey, we're the Robertellos! Welcome to our story.

Graham is diagnosed with a rare connective tissue disorder called Epidermolysis Bullosa (EB). There are many variations of EB, but they are all characterized by extremely fragile skin that blisters and tears with minor movements or friction. The type Graham has is one of the more severe kinds, and is called recessive dystrophic Epidermolysis Bullosa (RDEB). His skin lacks collagen, an important protein that helps with strengthening. Children with EB are referred to as butterfly children because as the analogy goes, their skin is as fragile as a butterfly’s wings.
 

Skin isn’t the only thing affected though. Internal organs and bodily systems are also affected. EB is always painful, often pervasive, and there is currently no cure. We strongly feel this diagnosis was put into our life for a reason. Our family's life mission is to advocate, spread awareness, and raise money for research in hopes of finding a cure. Each day we pray with so much hope in our hearts that our sweet Graham will someday see a life without this debilitating disease.